We'll here it us Sunday night the 20th of May and I'm feeling like I'm two steps backwards from where I was a week ago. Maybe it was too good to be true, but I was feeling on t0p of the world last weekend.....sore throat was gone, food was tasting good and everything going down the gullet and life was good. Now I'm sitting here with an extremely sore throat, sore tongue and on a scale of 1-10, feeling like a 3. I'm not sure what happened, but as of 3-4 days ago, my mouth and tongue starting getting sore again and the thick mucus came back.
What I'm really worried about at this point is the fact that I may have jumped the gun in getting the feeding tube removed. I'm having a hard time eating food again and now have resorted to only eating soft foods. If this gets too much worse and I get back to not being able to eat food, I'm gonna be sh+t out of luck, because there is no more feeing tube for me to nourish myself.
Marjie thinks I might have what they call "Thrush" which is the presence of creamy white, slightly raised lesions in your mouth – usually on your tongue or inner cheeks – but also sometimes on the roof of your mouth, gums, tonsils, or back of your throat.
A lot of patients who go through head and neck radiation get this. I was prescribe some medicine during my radiation when I was having an issue with the inside my mouth being all screwed, so I decided to start taking it again today.
I see Dr. Debo again tomorrow to review the results of the MRI and to schedule the PET scan. I'll discuss the issue I'm having in my mouth and see what his thoughts are on it. The last time I saw the doctor, he prescribed me a weeks worth of Prednisone. The funny thing is, is that during the week I was on the Prednisone, my mouth, sore throat and thick mucus healed up and that was when I was feeling good. When I was finished with the medicine, my symptoms came back and I'm back to feeling lousy again. Maybe this was just a coincidence...who knows.
So to wrap this up...I'm not feeling as good as I was last week. I'm concerned that I jumped the gun in getting the feeding tube removed. I can't even fathom the thought of going through another surgery to get another feeding tube installed and I'm pretty bummed out that my healing process is taking so long.
More to follow...will see the doc tomorrow morning.
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Dave, I feel for you. I also had thrush and actually Charles had it as a new baby. I hope you get control of it. There are more problems with healing than any other. Today May 22 is my birthday and I have heard from all these grandchildren and children - good day for me! Hope good days are coming your way. love, Jane
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