It's been a while since I last posted anything in this blog and thankfully Marjie has kept it going for me. I've just been feeling so run down these past couple weeks and just haven't had the energy to do much of anything. Seems as if I only feel ok is when I'm sleeping. I wish there was some kind of magic pill I could take that would knock me out for 2 weeks at a time. It would be much easier to handle that way.
Today was my 23rd session of radiation and 5th chemo session. I have 10 more sessions to go and 2 more chemo sessions all ending on the 4th of April. My throat is so sore and tastes buds totally gone that the only way I'm getting any nourishment is through the feeding tube. Can't even remember the last time I ate anything. Basically, I have 3 cans of Equate (Walmart Generic), a day. Vanilla for breakfast, Strawberry for Lunch and Chocolate for Dinner. None of which I can taste unless I burp or something. The only thing going down my gullet is H2O and my 2 daily doses (Glasses) of Juven.
My energy level has significantly dropped and I spend most of my time laying on the couch watching TV. I know, I know it sounds pretty pathetic. I have to carry around this spit cup which I'm constantly hacking in and spitting up this thick mucus all day and night. I cough so hard and have been dry heaving so much lately that I'm now coughing up a little blood every once in a while. I'd have to say that the nausea, leg pains, loss of hair, sore throat, mouth sores, and everything else bad that I've experienced in the last 5 months...the worst is this thick mucus in my mouth and the fact that everything I've tried to eat tastes like poisen. Actually with my throat so sore right now, I don't think I could get anything down the ole gullet even if I wanted to.
The nurses mentioned to me this afternoon that I'm really impressing everyone at the Cancer Treatment Center because of the fact that in their opinion I'm doing so good with the treatment. The thing a lot of it has to do with my age, but they all say that I'm breezing right through this.
All I can focus on these days is the fact that there is light at the end of the tunnel and I'm getting there one day at a time.
Not too much more going on with me....just doing my time I guess...Thanks for all the prayers and support each and everyone of you are giving me and my family..we all appreciate it!
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6 comments:
Dave, I don't know what you're talking about when you say it sounds pretty pathetic, I'd say by the sounds of things that you are doing awesome! I am sure they didn't cut down your number of treatments just because, it is probably due to the fact that you are doing so well!! And if lying on the couch watching TV for the next 2 weeks is what gets you through this, than so be it, but don't forget what those nurses are saying...you are doing great!!
You are almost there my TIMBUCKTWO Brother, and victory in this battle will soon be yours!
Thoughts and prayers to you Marjie, Jeen and David...everyday!
And as always...KEEP THE FAITH!!!!!
Juliet Romeo sends...
Sorry about that Jen, guess I had fat fingers and put one too many "E"'s in there.
Dave,
You're on the downhill slide, keep the faith. Sounds like everything is going in your favor, looking forward to seeing you at Timbucktwo. Keep up the good fight.
graz
Hello Dave
You have a difficult journey but you will get through. I have posted a link to your story from our website's online support group's message board http://rdoc.org.uk/eve/forums/a/tpc/f/78510549/m/8581030212 as it will be helpful to others having similar treatment. You might also find our online support group of assistance.
Best wishes
Vinod
--
Dr Vinod K Joshi
BDS(Singapore) DRDRCS(Edinburgh) FDSRCPS(Glasgow) FDSRCS(England)
Consultant in Restorative Dentistry
Restorative Dentistry Oncology Clinic
St Luke’s Hospital, Bradford
Pinderfields Hospital, Wakefield
United Kingdom
Founder, Mouth Cancer Foundation
http://www.mouthcancerfoundation.org
Mouth Cancer Foundation is a registered charity No. 1109298
Registered as a company limited by guarantee in England and Wales No. 5154295
Registered address: PO Box 498, Wakefield WF1 9AW
Tel/Fax: +44 (0) 845 126 0479
Mouth Cancer Foundation website: UK based mouth cancer website portal that provides patients, carers and health professionals with easy access to
comprehensive information on head and neck cancers and mouth cancer awareness campaigns.
http://www.mouthcancerfoundation.org/
Mouth Cancer Foundation Online Support Group: Provides practical advice and support for cancer patients, their families and carers.
http://chat.mouthcancerfoundation.org
Hang in there, kid - you can do this, I know. Only 9 more sessions and then it's over and the healing can begin. You'll be tasting cheeseburgers and steaks again before you know it. You are doing great and , despite what you think, your attitude is A-One - and that's a good part of the battle. Dad and I are pulling for you constantly, and even though you don't feel like talking much on the phone, know we are thinking of you all the time.
Marjie - you've been awesome through this, too....looking forward to all being together in June. Love, Mom
Dave, Charlie and I are so proud of you. The radiation was the worse for me so I have known it would be so difficult. I just watched tv too. BUT, I had OJ and the trial! It won't be long now and not much worse. Hang it there, You are awesome! And so is Marjie. Know we keep you both in our prayers and we love you, Jane
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